It may be hard to care for a family member who has special healthcare needs. So it’s important to find support so that you can give your child the best care you can.
Think about joining a support group in your area, or even online. These groups can help you connect with other parents who have a child with the same condition. They can also help you learn what resources you can find in your area.
Support groups can be a source of emotional support. But you may also find counselling useful. It can help you understand and deal with the wide range of emotions you may feel.
Your child will need help too. Providing emotional support for your child can help them cope with any problems they may face. And meeting other kids with the same condition can help your child feel like part of a community.
Working on Concerns
Many parents have some of the same concerns as their children grow. These may include:
- Newborn concerns. Examples are where to get emotional support and learn about Down syndrome.
- Infant concerns. Examples are what therapies your child may need and how to prevent colds.
- Early childhood concerns. Examples are how to teach healthy behaviours, social skills, and diet and exercise habits.
- Middle and late childhood concerns. Examples include how to support independence and education, and what team sports your child can play.
- Adolescent and young adult concerns. Examples are what to expect during puberty and adulthood.
At the end, remember, a person with Down syndrome is as much an individual as you and me. So learn to respect them and love them.